Essential
5 days ago
Be changed, from the inside out. -Romans 12:2
Posted Oct 5, 2009 3:03pm
Great work, Claire!!! The techs have taken her off of the EEG (monitoring her brain wave activity) because she is showing signs of alertness when her sedation starts wearing off. She has responded to the command: "open your eyes" and "move your finger"... although her response is slow, we have never been so thrilled to see Claire follow directions! We are still very aware that she has likely sustained some degree of brain damage, but we will not know the extent for quite some time. For now, we are just thrilled that she can hear us and respond at all. Her vitals remain stable (with heavy medication regulating them) and she has all but bored the nurses to death, today... which is just the way we want it.
Claire remains in very critical condition and although we are thrilled with every tiny bit of good news we receive, we have to stay "cautiously optimistic" about her condition. Her lungs remain covered with infection (although today's x-ray did show a tiny smudge of darkness at the top!) and she remains on the blood-thinner/life-support/bypass which are keeping her tiny little body alive. She is still fighting for her life...but what a fight she is putting up.
We are looking forward to another day of holding her warm, pudgy hand and reading to her. The fact that we are still here with her, one full week after her heart attack and crisis makes us the luckiest parents alive.
Posted Oct 6, 2009 9:13am
All stable over night. Vitals remain in good shape. She got a bath and looks nice and smooth. (The hair is another issue, and will require its own rehab therapist). She was suctioned again overnight and they were able to remove more gunk (I think that's the technical term); so we are hoping (cautiously, as always) for a good X-Ray report.
Posted 23 hours ago
Way to go, Monkey!! Another stable night for Claire, so we got a sweet, warm, soft hand to hold this morning. She is starting to give the doctors and staff a run for their money... she keeps coming off the sedative and tries to move her hands and legs, opens her eyes and attempts to breathe on her own (all good signs to Mom and Dad, but considered misbehaving to the docs since they want her completely still and inactive). They have added medications to keep her mellow (she has become a drug-addict's dream!). Today she opened her eyes on command, and when I asked she moved her little fingers while I was holding her hand, which of course had me in tears...but I'll take tears of joy any moment of the day!
Claire just finished having her lungs cleaned by the respiratory team. They used a video scope to find trouble spots of "gunk" (Scott's technical term), loosen them and then suck them out (I hope you are not eating while you read this!). She handled the treatment very well and will have a follow up x-ray at 1pm. Hopefully, I'll be back on with a good x-ray update this afternoon. We've heard "talk" by her medical team about weaning her off of the life-support machine and onto the ventilator over the course of the week and weekend. Nothing definite, but it seems they are encouraged about her stability and progress this week. The "weaning" process poses a whole new array of obstacles for Claire, but that little fighter has made it this far, so we are confident she is going to forge through this "Claire-style" and make those docs earn their paychecks this week.
We are so proud of our little girl and how strong she has been this week. She continues to amaze us each day.
Thank you to everyone who has helped us through this. All of your thoughts, prayers, and well-wishes are helping us make it through each day and they are helping Claire as she continues to fight for her life.
Posted 18 hours ago
DRUM ROLL, PLEASE...Look out, swine flu, here comes Claire Lane! Scott and I got to meet with the docs following Claire's x-ray and we are starting to see visible progress in her right lung. There are now two small sized pockets of air in her right lung, indicating a lack of GUNK in those two areas. This means that her lung has some "vacancy" for volume. Her left lung is still quite full, but there is one small area that is starting to darken - indicating a lack of gunk. She is definitely headed in the right direction, even though she is certainly not out of the woods. We continue to stay "cautiously optimistic" (that's our mantra for right now), but that little monkey is giving us so much hope. She has become our little Super Hero. When she gets out of here, I'm going to add a little red cape to her school uniform! We are so proud of you, Little Claire!!!
October 2, 2009
Dear Friends:
We give thanks to God that Claire continues to be stable in her condition. However, she is still a very sick little girl, and we ask for your continued prayers.
Some of you have been asking how to show your support to the Lane family. There are three ways:
1.) Visit www.carepages.com, create an account that you can sign onto, search to her webpage, and send a message to her and her family. At that site you will also be able to read updates from Scott and Lali about Claire's condition and progress. After you visit the site and set up your account, cut and paste this link into your browser: CLAIRE LANE
2.) Visit the Texas Children's hospital website at www.texaschildrens.org. Under the "Quicklinks" menu you'll find a link to "Send a patient greeting." Follow the direction and you'll produce a postcard that the TCH staff will deliver to Lali and Scott who will read it to Claire.
3.) Visitors to the PICU Waiting Room (Texas Children's Hospital, Floor Three) are now welcome. Of course, no one will be permitted to visit Claire, but Scott or Lali would be happy to see you. However, it is critical that all visitors to the PICU be completely symptom-free of any illness. If you are sneezing, coughing, have a headache, or even think you might be sick, please do not come. It would be very disappointing for someone to get Scott or Lali sick and, in so doing, prevent them from seeing their little girl.
Finally, please keep Claire, Olivia, Lali, and Scott in your prayers. We will be remembering them all at the altar this Sunday morning, and all are welcome to join us in prayer for them. But no matter where you are, whether in a church or elsewhere, please keep the Lane family in your prayers. The family appreciates this support, and it is doing more good for everyone concerned than we can imagine.
Family and Friends,
I am sending out this email to everyone on my email list imploring you to pray for a little girl named Claire Lane. Claire, her big sister, Olivia, and their parents are in for the fight of their lives right now. Here is her story:
Claire was diagnosed with the flu this past Saturday (9/26/09). She was taken back to the doctor yesterday and was admitted to Texas Children's because xrays showed full blown pneumonia in one of her lungs. Her lung collapsed, and last night, sweet Claire suffered a heart attack. BOTH of her lungs are filled with fluid and she is on a vent to keep her breathing. As I write this, I have learned that the doctors are preparing to do another procedure to attempt to drain her lungs. Her parents have been told that if her body does not start fighting the infection, she has less than a 5% chance of survival.
Please pray for this God-loving, people loving, sweet family. The Lanes are a wonderful family and have touched many lives, including mine. As a mother, I cannot imagine how Lali must be feeling to see her baby girl suffer so.
Please stop what you are doing and lift Claire Lane up to the Lord. Please ask Him to restore Claire to health, to bring strength and clarity of thought to her parents and sister.
I believe in a merciful, loving God, and I believe in the power of prayer. Please pass this on so that He can hear our prayers for Claire.
Thank you and may you be blessed, -- Jill
Oh, happiness
There is grace enough for us
And the whole human race
Oh, happiness
There is grace enough for us
And the whole human race
From the full streams
Of Your care
All who come
Begin again
Hard or friend
Rich or poor
All who need
Need fear no more
Such a thing to give away
Oh, happiness
There is grace enough for us
And the whole human race
Oh, happiness
There is grace enough for us
And the whole human race
All regrets
Let go, forget
There's something that
Mends all of that
Such a thing to give away
Oh, happiness
There is grace enough for us
And the whole human race
Oh, happiness
There is grace enough for us
And the whole human race
Sound the church bells
Let 'em ring
Let 'em ring
For everything can be redeemed
We can be redeemed
All of us
Oh, happiness
There is grace enough for us
And the whole human race
Oh, happiness
There is grace enough for us
And the whole human race
Colossians 3:1-10 NLT Since you have been raised to new life with Christ, set your sights on the realities of heaven, where Christ sits in the place of honor at God’s right hand. Think about the things of heaven, not the things of earth. For you died to this life, and your real life is hidden with Christ in God. And when Christ, who is your life, is revealed to the whole world, you will share in all his glory. So put to death the Sinful earthly things lurking within you. Have nothing to do with sexual immorality, impurity, lust, and evil desires. Don’t be greedy, for a greedy person is an idolater, worshipping the things of this world. Because of these sins the anger of God is coming. You used to do these things when your life was still part of this world. But now is the time to get rid of anger, rage, malicious behavior, slander, and dirty language. Don’t lie to each other, for you have stripped off your old sinful nature and all its wicked deeds. Put on your new nature, and be renewed as you learn to know your Creator and become like him.
Look at these examples of unholy living: Anyone sweating yet? Anyone realizing that maybe your life isn’t so holy after all?
Galatians 5:22-26 (NIV)
22 But the fruit of the Spirit is love, joy, peace, patience, kindness, goodness, faithfulness, 23 gentleness and self-control.
John 15:4-5 (NIV)
4 Remain in me, and I will remain in you. No branch can bear fruit by itself; it must remain in the vine. Neither can you bear fruit unless you remain in me.
5 "I am the vine; you are the branches. If a man remains in me and I in him, he will bear much fruit; apart from me you can do nothing.
EPHESIANS 5:1 says to Imitate God, therefore, in everything you do, because you are his dear children.